Hope your all doing well and are having a good weekend?
During this blog I wanted to talk about my recent appointment I had in London with a new Specialist, who had come all the way from Atlanta City,USA for work and a family holiday.
Well on the 9th March, I met Dr Patel at a London hotel in Kensington, so. That he could give me an assessment. Dr Patel specialises in Temporomandibular Joint Dysfunction, which is one of the contributing causes of Dystonic symptoms.
When he was examining me he had noticed that my jaw is out of alignment, potentially a defect that I have since birth but he thinks the continuous bangs to the head and concussions from rugby, may have made it a permanent fixture. I know my hands are affected but it’s all connected.
The videos I’m posting below are to show what he practices can and will help me. This is just a taster and hand on heart the results where amazing. I had improvement both in speech and hands. The hand video is very impressive.
As we stated, this is only the start, I need a mouth guard to wear permanently and I maybe going to Atlanta USA for this but waiting on confirmation.
It’s going to be a long journey but I’m so positive it will work. It’s the most hope I’ve had in 9years. It’s nice and heart warming to have a specialist who wants to help and not being told by the usual Specialist to get use to it like I have been for years.
So there’s a bit of a moral behind this blog. If you are like me and are not happy with what you arebeing told by your Specialists, then don’t give up! I knew deep down my Dystonic Symptoms occurred from a simple explanation and I was right.
I opened up, I showed the world with videos and pictures my struggles,battles, determination and hard graft battling Dystonia physically and mentally.
If anyone is out there reading this blog and have been in the same situation as me where they have no real answers from Dr’s only you can make the change. Just be open about your problems or disability. Being open for the world to see maybe that one person could have the answer your looking for 🙌❤
We are in a society where sometimes we can only help ourselves in getting the answers we need and from my past experiences, being an open book 📖 goes a long way 🙌
I hope you enjoyed this blog, I would love to hear your thoughts or any questions you may have 😊